When we finally sat with the doctor, we were like two teenage kids, footloose and fancy free….not prepared for what she had to say. After inquiring about our knowledge of our baby’s possible heart defect, she allowed me to describe in layman’s terms what we understood. She then turned her computer screen toward us and typed in AVSD. I recognized the acronym from a Facebook group I’m in, where families of children with Down Syndrome and heart defects share their stories. I knew immediately, this was worse than originally thought.

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