Shoulders

I write this post with tears streaming down my cheeks…a grieving of injustices and tragically misguided understanding of the value of life for those with Down syndrome. And as I reflect on the future I expect to give my daughter, I also weep from the overflow of gratefulness for those whose shoulders I stand on. I pray that my participation in history will create a better world for future generations of children living with Down syndrome.

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Binge

The Parent's Guide to Down Syndrome

Over the next 48 hours, I binge watched Youtube and every single clip that had anything to do with Down syndrome (Ds). I watched countless families stories, a day-in-the-life-of home videos, educational clips about Ds, and the options went on and on. Some of the videos were encouraging, hopeful and honest. Others were discouraging, ambiguous […]

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Diagnosis

The next day we drove back to Spokane for the scan and a chat with Tanya. I felt the emotions of the day brimming at my eyelids as we drove and talked. When a good friend had called me a couple years ago to tell me he had ‘just the guy’ for me, he described […]

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Results

As promised, Tanya called me back on Tuesday. Her call came late in the afternoon and Russ was home. I handed Madeleine to him as I glanced at the familiar number on my phone and I perched on the couch, looking out the window. I half wished I’d grabbed our calendar to remove the guesswork […]

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Birthdays

The statistics of risks associated with maternal age, do not communicate this same enthusiasm for baby endeavors. At 35 years old, a woman steps into a world where the numbers begin to tumble and risk of having children with chromosomal abnormality climbs. Although pregnancy is trending higher among 30+ women…we are considered ‘advanced maternal age’.

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Tests

I arrived at Sacred Heart’s Maternal Fetal Medicine clinic on January 4th. I was 14 weeks pregnant and only just starting to show evidence of a bump. A friend had come to help me with Madeleine. As we sat in the waiting room, I looked at the other pregnant women and wondered what circumstance had brought them there. My mind wandered into that query and I could only imagine their worse case scenarios. I, on the other hand, expected a one-time visit and confirmation that our little one was developing perfectly- just as Madeleine had.

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